Abstract
Over a 6 month period, all 92 residents were offered the opportunity to have a ReSPECT conversation and 86 accepted the opportunity. In addition to families/legal representatives, advocacy services were used to enable equitable participation. Digitally-facilitated communication tools were also offered.
The vast majority responded positively, and a mutually agreed ReSPECT form was completed. These were stored electronically on NHS systems and shared with the care home in paper format.
However, even when offered all available information some residents chose not to have a ReSPECT placing limitations on their care. Some family members objected strongly to what was being suggested. Case-by-case analysis is ongoing on the impact on unscheduled care use.
Conclusions
Our experiences highlight both the benefits of structured FCP, but also reflect the practical challenges and concerns among the population and those who support them. Empowering staff and family members to advocate in the event of a health deterioration was a powerful consequence. Equally, respecting individual preferences necessitates avoiding blanket approaches. ReSPECT discussions often enabled more timely hospital discharge when an admission occurred. Practical challenges, including the lack of care home access to NHS digital systems can be overcome, but reflect structural barriers to information sharing which integrated systems should avoid.